This is my boy. He isn't perfect, but he is mine. I am sure all parents think their kid is special... but mine is. He doesn't let little things get him down. He was born unable to sweat, has eczema, and only has 5 teeth. Other than that, he is pretty normal. He complains, he whines, he pushes every button in my body. But at the end of the day, he makes me laugh.
I started this blog for 2 reasons....
The first to help put a face to HED, and help other parents out their know they are not alone. This genetic disorder does not come with a handbook, but it does come with a tight knit group who band together to help raise their kids knowing that they are not alone, and they are loved and special.
The second, was just to share the crazy antics that this little person has brought into my life. Let's face it... kids are scary and weird... and mine, well... he is one weird little monkey. The things he comes up with... well, you just can't make this crap up.
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